🏛️ Verified NIH Record • Updated 2025-07-24
Clinical Trial Readiness for the Dystroglycanopathies (NCT00313677)
🟢 Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: Katherine Mathews
🩺 Plain-English Summary (8th-Grade Level)
The purpose of the study is to describe the early signs and symptoms of the dystroglycanopathies, and to gather information that will be required for future clinical trials.
Who can join: Review the eligibility criteria below.
Location: University of Iowa, 200 Hawkins Drive — Iowa City, Iowa
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- University of Iowa, 200 Hawkins Drive — Iowa City, Iowa
📞 Contact the Study Coordinator
Phone: (319) 356-2673
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
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💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.