Biobank For MS And Other Demyelinating Diseases (NCT00445367)
Large-scale, Multi-disciplinary Sample and Data Repository for Multiple Sclerosis and Related Demyelinating Diseases
🩺 Plain-English Summary (8th-Grade Level)
To establish a large, longitudinal collection of high quality samples and data from subjects with MS, selected other demyelinating diseases (Transverse Myelitis (TM), Neuromyelitis Optica (NMO) or Devic's, Acute Disseminated Encephalomyelitis (ADEM), and Optic Neuritis (ON)), and related and unrelated unaffected controls. Samples and data will be available as a shared resource to scientists researching the causes, sub-types, and biomarkers of MS and related demyelinating diseases.
Who can join: Review the eligibility criteria below.
Location: Barrow Neurological Institute — Phoenix, Arizona
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (10 Sites)
- Barrow Neurological Institute — Phoenix, Arizona
- Stanford University — Stanford, California
- The Rocky Mountain MS Center at Anschutz Medical Campus at UC Denver — Aurora, Colorado
- Shepherd Center — Atlanta, Georgia
- Johns Hopkins — Baltimore, Maryland
- Beth Israel Deaconess — Boston, Massachusetts
- University of Massachusetts Medical School — Worcester, Massachusetts
- Multiple Sclerosis Research Center of New York — New York, New York
- The Ohio State University — Columbus, Ohio
- University of Texas Southwestern Medical Center at Dallas — Dallas, Texas
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
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💡 How to Participate
- Check the checklist above to see if you may qualify.
- Review the official NIH record below to find the coordinating site.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.