Collection of Samples and Clinical Data From Patients With Amyloid Diseases (NCT00898235)
Data, Tissue, Blood, and Urine Repository for Amyloid Diseases
🩺 Plain-English Summary (8th-Grade Level)
RATIONALE: Collecting and storing samples of blood, urine, tissue and data from patients with amyloid diseases to test in the laboratory may help the study of this disease in the future. PURPOSE: This research study is collecting samples from patients with amyloid diseases
Who can join: Review the eligibility criteria below.
Location: Boston University Cancer Research Center — Boston, Massachusetts
Age range: 18 Years
🧪 Interventions in This Study
- clonality analysis (GENETIC)
- polymerase chain reaction (GENETIC)
- protein analysis (GENETIC)
- biologic sample preservation procedure (OTHER)
- laboratory biomarker analysis (OTHER)
- fluorescence spectroscopy (PROCEDURE)
- quality-of-life assessment (PROCEDURE)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Boston University Cancer Research Center — Boston, Massachusetts
📞 Contact the Study Coordinator
Phone: (617) 638-8261
Email: vaishali.sanchorawala@bmc.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
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💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.