🏛️ Verified NIH Record • Updated 2026-02-26
Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome (NCT01425944)
The Brain Vascular Malformations Clinical Research Network: Predictors of Clinical Course, Project 2: Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome
🔵 Active, Not Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: Hugo W. Moser Research Institute at Kennedy Krieger, Inc.
🩺 Plain-English Summary (8th-Grade Level)
This study has three aims that hope to expand the knowledge on the cause of Sturge-Weber Syndrome (SWS) and improve clinical care of Sturge-Weber Syndrome patients.
Who can join: Review the eligibility criteria below.
Location: Kennedy Krieger Institute — Baltimore, Maryland
Age range: 1 Month
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (7 Sites)
- Kennedy Krieger Institute — Baltimore, Maryland
- Wayne State University/Children's Hospital of Michigan — Detroit, Michigan
- New York University — New York, New York
- Cincinnati Children's Hospital — Cincinnati, Ohio
- Nationwide Children's Hospital — Columbus, Ohio
- Wills Eye Institute — Philadelphia, Pennsylvania
- Baylor College of Medicine/Texas Children's Hospital — Houston, Texas
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Sturge-Weber Syndrome
- Longitudinal Neuroimaging in Sturge-Weber Syndrome — Detroit, Michigan
Explore by condition: All Sturge-Weber Syndrome clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Review the official NIH record below to find the coordinating site.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.