🏛️ Verified NIH Record • Updated 2025-09-15
Atypical Hemolytic-Uremic Syndrome (aHUS) Registry (NCT01522183)
An Observational, Non-Interventional, Multi-Center, Multi-National Study of Patients With Atypical Hemolytic-Uremic Syndrome (aHUS Registry)
🟢 Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: Alexion Pharmaceuticals, Inc.
🩺 Plain-English Summary (8th-Grade Level)
Post-marketing safety data on patients treated and untreated with eculizumab or ravulizumab.
Who can join: Review the eligibility criteria below.
Location: Clinical Trial Site — Aurora, Colorado
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (141 Sites)
Showing the first 25 of 141 sites.
- Clinical Trial Site — Aurora, Colorado
- Clinical Trial Site — Washington D.C., District of Columbia
- Clinical Trial Site — Gainesville, Florida
- Clinical Trial Site — Atlanta, Georgia
- Clinical Trial Site — Chicago, Illinois
- Clinical Trial Site — Boston, Massachusetts
- Clinical Trial Site — St Louis, Missouri
- Clinical Trial Site — Winston-Salem, North Carolina
- Clinical Trial Site — Columbus, Ohio
- Clinical Trial Site 1 — Westmead, New South Wales
- Clinical Trial Site 2 — Westmead, New South Wales
- Clinical Trial Site — Cairns, Queensland
- Clinical Trial Site — Herston, Queensland
- Clinical Trial Site — Woolloongabba, Queensland
- Clinical Trial Site — Adelaide, South Australia
- Clinical Trial Site — Heidelberg, Victoria
- Clinical Trial Site — Parkville, Victoria
- Clinical Trial Site — Parkville, Victoria
- Clinical Trial Site — Murdoch, Western Australia
- Clinical Trial Site — Nedlands, Western Australia
- Clinical Trial Site — Brussels,
- Clinical Trial Site — Brussels,
- Clinical Trial Site — Brussels,
- Clinical Trial Site (Adult) — Edegem,
- Clinical Trial Site (Pediatric) — Edegem,
📞 Contact the Study Coordinator
Phone: (855) 752-2356
Email: clinicaltrials@alexion.com
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
Explore by condition: All Atypical Hemolytic-Uremic Syndrome clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.