Scleroderma Registry & Repository at the Hospital for Special Surgery (NCT01656447)
The Scleroderma Registry & Repository
🩺 Plain-English Summary (8th-Grade Level)
The overall objective of the Scleroderma Registry is to support and promote the basic science and clinical research of this complex rheumatic disease at the Hospital for Special Surgery (HSS). The registry facilitates our understanding of the clinical features, pathobiology, genetics of Scleroderma. This will ultimately lead to a potential treatment for this currently untreatable condition.
Who can join: Review the eligibility criteria below.
Location: Hospital for Special Surgery — New York, New York
Age range: 18 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Hospital for Special Surgery — New York, New York
📞 Contact the Study Coordinator
Phone: (212) 774-2123
Email: pelrinee@hss.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Scleroderma
- Brain Boost Program to Improve Cognitive Function in People With Systemic Sclerosis — Ann Arbor, Michigan
- Delving Into Participation Trends of Scleroderma Clinical Trials — San Francisco, California
- Sildenafil for Early Pulmonary Vascular Disease in Scleroderma — New Orleans, Louisiana
Explore by condition: All Scleroderma clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.