Primary Tumor Research and Outcomes Network (NCT02790983)
Primary Tumor Research and Outcomes Network (PTRON) A Multicenter Prospective Registry for the Management and Outcomes of Primary Tumors of the Spine
🩺 Plain-English Summary (8th-Grade Level)
This project aims to establish a network of spine oncology centers dedicated to prospective multicenter research of patients diagnosed with a primary tumor of the spine and will include a comprehensive prospective clinical database which will serve as a shared research platform. Demographic, clinical, diagnostic, and therapeutic variables will be used to answer questions about survival and local recurrence, as well as questions about adverse events (AEs), morbidity data, and health-related quality of life (HRQOL) outcomes.
Who can join: Review the eligibility criteria below.
Location: University of California — Los Angeles, California
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (19 Sites)
- University of California — Los Angeles, California
- UCSF Medical Center — San Francisco, California
- Johns Hopkins University School of Medicine — Baltimore, Maryland
- Massachusetts General Hospital — Boston, Massachusetts
- Mayo Clinic — Rochester, Minnesota
- Memorial Sloan-Kettering Cancer Center — New York, New York
- Memorial Sloan Kettering Cancer Center — New York, New York
- Rhode Island Hospital — Providence, Rhode Island
- The University of Texas M.D. Anderson Cancer Center — Houston, Texas
- University of Queensland, School of Medicine — Brisbane,
- Vancouver General Hospital and the University of British Columbia — Vancouver, British Columbia
- Toronto Western Hospital — Toronto, Ontario
- Peking University 3rd Hospital — Beijing, Beijing Municipality
- Universitaetsklinikum Carl Gustav Carus der Techn. Universitaet - Dresden — Dresden,
- National Center for Spinal Disorders and Buda Health Center — Budapest,
- Istituto Ortopedico Rizzoli — Bologna,
- IRCCS Istituto Ortopedico Galeazzi — Milan,
- Kanazawa Medical University Hospital — Kanazawa,
- Oxford University Hospitals — Oxford,
📞 Contact the Study Coordinator
Phone: +41 79 671 47 98
Email: felix.thomas@aofoundation.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
Explore by condition: All Spinal Column Tumor clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.