National Collaborative to Improve Care of Children With Complex Congenital Heart Disease (NCT02852031)
National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) - A Collaborative Initiative to Improve Care of Children With Complex Congenital Heart Disease
🩺 Plain-English Summary (8th-Grade Level)
The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.
Who can join: Review the eligibility criteria below.
Location: Children's of Alabama — Birmingham, Alabama
Age range: Not specified to 15 Months
🧪 Interventions in This Study
- Collaborative Learning Network (OTHER)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (63 Sites)
Showing the first 25 of 63 sites.
- Children's of Alabama — Birmingham, Alabama
- Phoenix Children's Hospital — Phoenix, Arizona
- Arkansas Children's Hospital — Little Rock, Arkansas
- Children's Hospital Los Angeles — Los Angeles, California
- UCLA Mattel Children's Hospital — Los Angeles, California
- Lucile Packard Children's Hospital-Stanford — Palo Alto, California
- Sutter Medical Center-Sacramento — Sacramento, California
- UC Davis Children's Hospital — Sacramento, California
- Rady Children's Hospital — San Diego, California
- Children's Hospital Colorado — Aurora, Colorado
- Nemours Cardiac Center, A.I DuPont Hospital for Children — Wilmington, Delaware
- Children's National Medical Center — Washington D.C., District of Columbia
- University of Florida-UF Health — Gainesville, Florida
- Nicklaus Children's Hospital — Miami, Florida
- Arnold Palmer Children's Hospital — Orlando, Florida
- Johns Hopkins All Children's Hospital — St. Petersburg, Florida
- Children's Healthcare of Atlanta — Atlanta, Georgia
- Ann and Robert H. Lurie Children's Hospital of Chicago — Chicago, Illinois
- Advocate Children's Hospital — Oak Lawn, Illinois
- Riley Hospital for Children at IU Health — Indianapolis, Indiana
- University of Iowa Children's Hospital — Iowa City, Iowa
- Norton Children's Hospital — Louisville, Kentucky
- Ochsner Hospital For Children — Jefferson, Louisiana
- Children's Hospital New Orleans — New Orleans, Louisiana
- University of Maryland Children's Hospital — Baltimore, Maryland
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
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💡 How to Participate
- Check the checklist above to see if you may qualify.
- Review the official NIH record below to find the coordinating site.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.