Early PKD Observational Cohort Study (NCT02936791)
🩺 Plain-English Summary (8th-Grade Level)
This observational study will collect blood and urine and clinical information from individuals with early-stages of polycystic kidney disease (PKD), their unaffected siblings and normal volunteers to create a biobank, also called a biorepository. The long-term goal is to develop new knowledge on biological markers or biomarkers that indicate changes in the disease progression. An understanding of biomarkers for early renal cyst growth will benefit PKD patients as new therapies are being developed and tested.
Who can join: Review the eligibility criteria below.
Location: University of Chicago — Chicago, Illinois
Age range: 4 Years to 35 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (3 Sites)
- University of Chicago — Chicago, Illinois
- University of Kansas Medical Center — Kansas City, Kansas
- Children's Mercy Hospital — Kansas City, Missouri
📞 Contact the Study Coordinator
Phone: (913) 588-0053
Email: ccreed@kumc.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Polycystic Kidney Disease
- Well-Formulated Ketogenic Diet Polycystic Kidney Disease — Columbus, Ohio
- Polycystic Kidney Disease Data Repository — New York, New York
- PKD Clinical and Translational Core Study — Baltimore, Maryland
Explore by condition: All Polycystic Kidney Disease clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.