๐๏ธ Verified NIH Record โข Updated 2025-05-21
Prospective Natural History Study of Retinitis Pigmentosa (NCT04285398)
Natural History Study of Retinitis Pigmentosa Due to RHO, PDE6a or PDE6b Mutations
๐ต Active, Not Recruiting Observational / Diagnostic ๐ Clinical Research Protocol Sponsor: SparingVision
๐ฉบ Plain-English Summary (8th-Grade Level)
This is natural history study of rods and cones degenerations in patients with Retinitis Pigmentosa (RP) caused by pathogenic mutations in RHO, PDE6a or PDE6b gene mutations.
Who can join: Review the eligibility criteria below.
Location: UPMC Eye Center โ Pittsburgh, Pennsylvania
Age range: 18 Years
๐งช Interventions in This Study
- Ophthalmic examinations (OTHER)
- Mobility Test (OTHER)
๐ "Do I Qualify?" โ 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria โ
๐ All Participating Trial Locations (2 Sites)
- UPMC Eye Center โ Pittsburgh, Pennsylvania
- CHNO XV-XX Paris - CIC 1423 โ Paris,
๐ฐ Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA ยง 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Retinitis Pigmentosa
- Safety of a Single, Intravitreal Injection of 6.0M jCell (Famzeretcel) in Retinitis Pigmentosa (RP) โ Phoenix, Arizona
- Natural History of PRPF31 Mutation-Associated Retinal Dystrophy โ San Francisco, California
- Study to Evaluate Safety of RTx-015 Injection in Retinitis Pigmentosa or Choroideremia Patients (ENVISION) โ Beverly Hills, California
- FIGHT-RP 1 Extension Study โ Baltimore, Maryland
- Promising ROd-cone DYstrophy Gene therapY โ Miami, Florida
Explore by condition: All Retinitis Pigmentosa clinical trials
๐ก How to Participate
- Check the checklist above to see if you may qualify.
- Review the official NIH record below to find the coordinating site.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.