๐Ÿ›๏ธ Verified NIH Record โ€ข Updated 2026-07-29

ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD) (NCT04363684)

๐ŸŸข Recruiting Interventional Protocol ๐Ÿ“Š Observational Clinical Research Sponsor: Mayo Clinic

๐Ÿฉบ Plain-English Summary (8th-Grade Level)

ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD) represents the formalized integration of ARTFL (U54 NS092089; funded through 2019) and LEFFTDS (U01 AG045390; funded through 2019) as a single North American research consortium to study FTLD for 2019 and beyond.

Who can join: Review the eligibility criteria below.

Location: University of Alabama Birmingham โ€” Birmingham, Alabama

Age range: 18 Years

๐Ÿ“‹ "Do I Qualify?" โ€” 1-Minute Self Screener

Instant Checklist

Full eligibility criteria are available on the official NIH protocol. View the criteria โ†—

๐Ÿ“ All Participating Trial Locations (27 Sites)

Showing the first 25 of 27 sites.

  • University of Alabama Birmingham โ€” Birmingham, Alabama
  • University of California, Los Angeles โ€” Los Angeles, California
  • University of California, San Diego โ€” San Diego, California
  • University of California San Francisco โ€” San Francisco, California
  • University of Colorado Denver โ€” Denver, Colorado
  • Mayo Clinic Florida โ€” Jacksonville, Florida
  • Emory University โ€” Atlanta, Georgia
  • Northwestern University โ€” Chicago, Illinois
  • Indiana University โ€” Indianapolis, Indiana
  • Johns Hopkins University โ€” Baltimore, Maryland
  • NIH โ€” Bethesda, Maryland
  • Massachusetts General Hospital โ€” Boston, Massachusetts
  • University of Michigan โ€” Ann Arbor, Michigan
  • Mayo Clinic Rochester โ€” Rochester, Minnesota
  • Washinton University in St. Louis โ€” St Louis, Missouri
  • Cleveland Clinic Lou Ruvo Center for Brain Health โ€” Las Vegas, Nevada
  • Mount Sinai โ€” New York, New York
  • Columbia University โ€” New York, New York
  • University of North Carolina, Chapel Hill โ€” Chapel Hill, North Carolina
  • Case Western Reserve Medical Center โ€” Cleveland, Ohio
  • University of Pennsylvania โ€” Philadelphia, Pennsylvania
  • Vanderbilt University โ€” Nashville, Tennessee
  • Nantz National Alzheimer Center Houston โ€” Houston, Texas
  • UT San Antonio Health Science Center โ€” San Antonio, Texas
  • University of Washington โ€” Seattle, Washington

๐Ÿ“ž Contact the Study Coordinator

Phone: (507) 293-9577

Email: forsberg.leah@mayo.edu

Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.

๐Ÿ’ฐ Cost, Insurance & Patient Rights

  • 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
  • Routine Patient Care: Under federal law (ACA ยง 2709) and many state statutes, routine care costs are covered during participation.
  • Voluntary Participation: You may withdraw at any time without affecting your standard medical care.

More studies in Frontotemporal Lobar Degeneration (FTLD)

๐Ÿ’ก How to Participate

  1. Check the checklist above to see if you may qualify.
  2. Contact the study coordinator using the phone/email above.
  3. Ask about the visit schedule, what is covered at no cost, and any travel support.
  4. Confirm with your own doctor before making a decision.
๐Ÿ›๏ธ View Official NIH Record โ†—