🏛️ Verified NIH Record • Updated 2026-05-04
GSD VI and GSD IX Natural History (NCT04454216)
🟢 Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: Duke University
🩺 Plain-English Summary (8th-Grade Level)
Collection and review of clinical information related to Glycogen Storage Disease Type VI (GSD VI) OR Glycogen Storage Disease Type IX (GSD IX) generated during clinic visits.
Who can join: Review the eligibility criteria below.
Location: Duke University — Durham, North Carolina
Age range: 0 Years to 90 Years
🧪 Interventions in This Study
- No intervention (OTHER)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Duke University — Durham, North Carolina
📞 Contact the Study Coordinator
Phone: (919) 681-8823
Email: rebecca.koch@duke.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
Explore by condition: All Glycogen Storage Disease VI clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.