Pulmonary Fibrosis Foundation Community Registry (NCT05382572)
🩺 Plain-English Summary (8th-Grade Level)
Pulmonary fibrosis (PF) results from a diverse group of health conditions and affects the lives of patients (including those who are post lung transplant), caregivers and family members. The Pulmonary Fibrosis Foundation Community Registry will offer an online portal where participants can self-enroll and directly contribute information about their experience with PF to be compiled into a longitudinal data set for use by researchers.
Who can join: Review the eligibility criteria below.
Location: Pulmonary Fibrosis Foundation — Chicago, Illinois
Age range: 18 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Pulmonary Fibrosis Foundation — Chicago, Illinois
📞 Contact the Study Coordinator
Phone: (312) 818-5731
Email: registry@pulmonaryfibrosis.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Pulmonary Fibrosis
- Analysis of Specimens From Individuals With Pulmonary Fibrosis — Bethesda, Maryland
- Microarray Analysis of Gene Expression in Idiopathic Pulmonary Fibrosis (IPF) — Pittsburgh, Pennsylvania
- A Study Evaluating the Safety and Efficacy of Inhaled AP01 in Participants With Progressive Pulmonary Fibrosis — Birmingham, Alabama
- Assessing the Efficacy of Sirolimus in Patients With COVID-19 Pneumonia for Prevention of Post-COVID Fibrosis — Chicago, Illinois
- Long-term Extension Study to Evaluate Safety and Tolerability of Admilparant in Participants With Pulmonary Fibrosis — Birmingham, Alabama
- Genetic Polymorphisms in Idiopathic Pulmonary Fibrosis (IPF) — Pittsburgh, Pennsylvania
Explore by condition: All Pulmonary Fibrosis clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.