๐Ÿ›๏ธ Verified NIH Record โ€ข Updated 2026-07-01

CIMR Neuromuscular Research Biobank (NCT05434572)

Center for Inherited Muscle Research Neuromuscular Research Biobank

๐ŸŸข Recruiting Interventional Protocol ๐Ÿ“Š Observational Clinical Research Sponsor: Virginia Commonwealth University

๐Ÿฉบ Plain-English Summary (8th-Grade Level)

The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.

Who can join: Review the eligibility criteria below.

Location: Virginia Commonwealth University โ€” Richmond, Virginia

Age range: Not specified to 75 Years

๐Ÿ“‹ "Do I Qualify?" โ€” 1-Minute Self Screener

Instant Checklist

Full eligibility criteria are available on the official NIH protocol. View the criteria โ†—

๐Ÿ“ All Participating Trial Locations (1 Sites)

  • Virginia Commonwealth University โ€” Richmond, Virginia

๐Ÿ“ž Contact the Study Coordinator

Phone: (804) 628-1624

Email: nicholas.johnson@vcuhealth.org

Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.

๐Ÿ’ฐ Cost, Insurance & Patient Rights

  • 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
  • Routine Patient Care: Under federal law (ACA ยง 2709) and many state statutes, routine care costs are covered during participation.
  • Voluntary Participation: You may withdraw at any time without affecting your standard medical care.

More studies in Neuromuscular Diseases

๐Ÿ’ก How to Participate

  1. Check the checklist above to see if you may qualify.
  2. Contact the study coordinator using the phone/email above.
  3. Ask about the visit schedule, what is covered at no cost, and any travel support.
  4. Confirm with your own doctor before making a decision.
๐Ÿ›๏ธ View Official NIH Record โ†—