πŸ›οΈ Verified NIH Record β€’ Updated 2026-04-10

Lupus Landmark Study: A Prospective Registry and Biorepository (NCT05934149)

Lupus Nexus Landmark Study: A Prospective Registry and Biorepository

🟒 Recruiting Interventional Protocol πŸ“Š Observational Clinical Research Sponsor: Lupus Research Alliance

🩺 Plain-English Summary (8th-Grade Level)

The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).

Who can join: Review the eligibility criteria below.

Location: University of Alabama at Birmingham β€” Birmingham, Alabama

Age range: 18 Years to 110 Years

πŸ“‹ "Do I Qualify?" β€” 1-Minute Self Screener

Instant Checklist

Full eligibility criteria are available on the official NIH protocol. View the criteria β†—

πŸ“ All Participating Trial Locations (25 Sites)

  • University of Alabama at Birmingham β€” Birmingham, Alabama
  • University of Arizona β€” Tucson, Arizona
  • Wallace Rheumatic Studies Center β€” Beverly Hills, California
  • UCLA β€” Los Angeles, California
  • Georgetown University β€” Washington D.C., District of Columbia
  • University of Miami β€” Miami, Florida
  • Emory University β€” Atlanta, Georgia
  • University of Chicago β€” Chicago, Illinois
  • Brigham and Women's Hospital β€” Boston, Massachusetts
  • University of Massachusetts Memorial Health β€” Worcester, Massachusetts
  • Washington University β€” St Louis, Missouri
  • The Feinstein Institutes for Medical Research β€” Manhasset, New York
  • Columbia University Medical Center β€” New York, New York
  • Northwell Health β€” New York, New York
  • SUNY Upstate β€” Syracuse, New York
  • UNC Chapel Hill β€” Chapel Hill, North Carolina
  • The MetroHealth System β€” Cleveland, Ohio
  • Vanderbilt University Medical Center β€” Nashville, Tennessee
  • UT Southwestern Medical Center β€” Dallas, Texas
  • University of Calgary β€” Calgary, Alberta
  • University of Alberta Hospital β€” Edmonton, Alberta
  • University of Manitoba β€” Winnipeg, Manitoba
  • University Health Network/Toronto Western Hospital β€” Toronto, Ontario
  • McGill University Health Centre β€” Montreal, Quebec
  • CHU de QuΓ©bec - UniversitΓ© Laval β€” QuΓ©bec, Quebec

πŸ“ž Contact the Study Coordinator

Phone: (646) 884-6084

Email: lupusnexus@lupusresearch.org

Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.

πŸ’° Cost, Insurance & Patient Rights

  • 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
  • Routine Patient Care: Under federal law (ACA Β§ 2709) and many state statutes, routine care costs are covered during participation.
  • Voluntary Participation: You may withdraw at any time without affecting your standard medical care.

πŸ’‘ How to Participate

  1. Check the checklist above to see if you may qualify.
  2. Contact the study coordinator using the phone/email above.
  3. Ask about the visit schedule, what is covered at no cost, and any travel support.
  4. Confirm with your own doctor before making a decision.
πŸ›οΈ View Official NIH Record β†—