Lupus Landmark Study: A Prospective Registry and Biorepository (NCT05934149)
Lupus Nexus Landmark Study: A Prospective Registry and Biorepository
π©Ί Plain-English Summary (8th-Grade Level)
The purpose of the registry and biorepository is to provide a mechanism to store clinical data, linked biospecimens and molecular data to support the conduct of future research on Systemic Lupus Erythematosus (SLE), including Lupus Nephritis (LN).
Who can join: Review the eligibility criteria below.
Location: University of Alabama at Birmingham β Birmingham, Alabama
Age range: 18 Years to 110 Years
π "Do I Qualify?" β 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria β
π All Participating Trial Locations (25 Sites)
- University of Alabama at Birmingham β Birmingham, Alabama
- University of Arizona β Tucson, Arizona
- Wallace Rheumatic Studies Center β Beverly Hills, California
- UCLA β Los Angeles, California
- Georgetown University β Washington D.C., District of Columbia
- University of Miami β Miami, Florida
- Emory University β Atlanta, Georgia
- University of Chicago β Chicago, Illinois
- Brigham and Women's Hospital β Boston, Massachusetts
- University of Massachusetts Memorial Health β Worcester, Massachusetts
- Washington University β St Louis, Missouri
- The Feinstein Institutes for Medical Research β Manhasset, New York
- Columbia University Medical Center β New York, New York
- Northwell Health β New York, New York
- SUNY Upstate β Syracuse, New York
- UNC Chapel Hill β Chapel Hill, North Carolina
- The MetroHealth System β Cleveland, Ohio
- Vanderbilt University Medical Center β Nashville, Tennessee
- UT Southwestern Medical Center β Dallas, Texas
- University of Calgary β Calgary, Alberta
- University of Alberta Hospital β Edmonton, Alberta
- University of Manitoba β Winnipeg, Manitoba
- University Health Network/Toronto Western Hospital β Toronto, Ontario
- McGill University Health Centre β Montreal, Quebec
- CHU de QuΓ©bec - UniversitΓ© Laval β QuΓ©bec, Quebec
π Contact the Study Coordinator
Phone: (646) 884-6084
Email: lupusnexus@lupusresearch.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
π° Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA Β§ 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Systemic Lupus Erythematosus (SLE)
- Descartes-08 for Patients With Systemic Lupus Erythematosus β Oceanside, California
- A Study of Enpatoran in Participants With Cutaneous Manifestations of Lupus With or Without Systemic Disease β Los Angeles, California
- A Study to Continue the Administration of Deucravacitinib in Participants With Systemic Lupus Erythematosus (SLE) or Discoid and/or Subacute Cutaneous Lupus Erythematosus (DLE/SCLE) Who Have Completed Study IM011074 or Study IM011132 β Farmington, Connecticut
- Double-blind Placebo Controlled Study to Evaluate the Effect of NAD+ Boosting With Nicotinamide Riboside on Immunometabolism and Immunity in Systemic Lupus Erythematosus β Bethesda, Maryland
- A Study in Participants With Active Systemic Lupus Erythematosus With Inadequate Response to Glucocorticoids and β₯2 Immunosuppressants β Mesa, Arizona
- Gonadotropin-releasing Hormone Agonist (GnRHa) in Ovarian Preservation in SLE Subjects Receiving Cyclophosphamide as Determined by Questionnaires β Bethesda, Maryland
Explore by condition: All Systemic Lupus Erythematosus (SLE) clinical trials
π‘ How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.