Friedreich Ataxia Global Clinical Consortium UNIFIED Natural History Study (NCT06016946)

Full eligibility criteria are available on the official NIH protocol. View the criteria ↗

📍 All Participating Trial Locations (34 Sites)

Showing the first 25 of 34 sites.

• UCLA Ataxia Center — Los Angeles, California
• University of Colorado — Denver, Colorado
• University of Florida - Neurology — Gainesville, Florida
• USF Ataxia Research Center — Tampa, Florida
• Emory University Hospital - Neurology — Atlanta, Georgia
• University of Iowa, Stead Family Children's Hospital — Iowa City, Iowa
• Ohio State University - Neurology — Columbus, Ohio
• Children's Hospital of Philadelphia — Philadelphia, Pennsylvania
• St. Jude Children's Research Hospital — Memphis, Tennessee
• Murdoch Childrens Research Institute — Parkville, Victoria
• Medical University Innsbruck, Department of Neurology — Innsbruck,
• Université Libre de Bruxelles, Hôpital Erasme, Dpt of Neurology — Brussels,
• University of Campinas — Campinas,
• The Hospital for Sick Children — Toronto, Ontario
• CHUM - Hopital Notre-Dame — Montreal, Quebec
• McGill University Health Centre - Montreal Neurological Institute — Montreal, Quebec
• Motol University Hospital, Centre for Hereditary Ataxias — Prague,
• Paris Brain Institute — Paris,
• Hôpital de Hautepierre, Service de Neurologie — Strasbourg,
• University Hospital Aachen, Dept. of Neurology — Aachen,
• Deutsches Zentrum Für Neurodegenerative Erkrankungen — Bonn,
• University of Munich, Dept. of Neurology, Friedrich-Baur-Institut — Munich,
• University of Tübingen, Dept. of Neurodegenerative Diseases, Hertie-Institute for Clinical Brain Research — Tübingen,
• National and Kapodistrian University of Athens, Neurogenetics Unit — Athens,
• All India Institute of Medical Sciences (AIIMS) — New Delhi, National Capital Territory of Delhi

📞 Contact the Study Coordinator

Phone: (651) 329-1892

Email: cait.monette@cureFA.org

Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.

💰 Cost, Insurance & Patient Rights

• 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
• Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
• Voluntary Participation: You may withdraw at any time without affecting your standard medical care.

More studies in Friedreich Ataxia

• A Study to Find Out How BIIB141 (Omaveloxolone) is Processed in the Body and to Learn More About Its Safety in Participants With Friedreich's Ataxia Aged 2 to 15 Years Old — Philadelphia, Pennsylvania
• A Natural History Study to TRACK Brain and Spinal Cord Changes in Individuals with Friedreich Ataxia (TRACK-FA) — Gainesville, Florida
• FA Clinical Outcome Measures — Los Angeles, California
• A Study to Assess the Safety and Efficacy of Vatiquinone in Participants With Friedreich Ataxia — Los Angeles, California
• Gene Therapy for Cardiomyopathy Associated With Friedreich's Ataxia — Los Angeles, California
• Clinical Course Of Disease In Participants With FA-CM — La Jolla, California

Explore by condition: All Friedreich Ataxia clinical trials

💡 How to Participate

1. Check the checklist above to see if you may qualify.
2. Contact the study coordinator using the phone/email above.
3. Ask about the visit schedule, what is covered at no cost, and any travel support.
4. Confirm with your own doctor before making a decision.