Multicenter HomeVENT: Home Values and Experiences Navigation Track (NCT06102330)
🩺 Plain-English Summary (8th-Grade Level)
This is a multicenter study to test a decision-making support process for families and clinicians facing decisions about chronic home ventilation for a child. The investigators hypothesize that the intervention will increase family preparedness for decision-making and will improve clinician-family shared-decision making. Half of families will be assigned to "usual care" arm and half to the "intervention" arm. Intervention families will view the study website with study staff and will answer questions related to website content. All families will be interviewed and surveyed at 1, 6 and 12 months after enrollment. Each family will designate 1-2 physician involved in the decision about home ventilation; each physician will be interviewed and surveyed at 1 month.
Who can join: Review the eligibility criteria below.
Location: Johns Hopkins All Childrens Hospital — Tampa, Florida
Age range: 18 Years
🧪 Interventions in This Study
- HomeVENT decision support tool (OTHER)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (4 Sites)
- Johns Hopkins All Childrens Hospital — Tampa, Florida
- Children's Hospital New Orleans — New Orleans, Louisiana
- Johns Hopkins University School of Medicine — Baltimore, Maryland
- Seattle Childrens Hospital — Seattle, Washington
📞 Contact the Study Coordinator
Phone: (410) 614-6444
Email: rboss1@jhu.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Pediatric ALL
- Investigation of Remimazolam in Children Undergoing Sedation for Medical Procedures — Palo Alto, California
- Umbilical Vessel Catheterization Under ECG Monitoring and Guidance — Palo Alto, California
- Evaluating the Relationship Between Skin Color and Pulse Oximeter Accuracy in Children — New York, New York
- Evaluation of Pediatric eCART Implementation — Madison, Wisconsin
- Pharmacokinetics of Drugs Administered to Children — Durham, North Carolina
- Pediatric Normative Markerless Movement Analysis — Puyallup, Washington
Explore by condition: All Pediatric ALL clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.