🏛️ Verified NIH Record • Updated 2025-05-06
A Study Providing Genetic Testing to Find Those Who May Have Primary Ciliary Dyskinesia for Potential Clinical Trials (NCT06172374)
DNAI1 Primary Ciliary Dyskinesia: Genetic Testing, Patient Finding and Increasing Disease Awareness Program
🔵 Active, Not Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: ReCode Therapeutics
🩺 Plain-English Summary (8th-Grade Level)
Primary purpose is to identify individuals who have PCD due to a genetic mutation within the DNAI1 and other genes of interest to help refer participants to future clinical studies for this rare disease.
Who can join: Review the eligibility criteria below.
Location: ReCode Therapeutics, Inc. — Menlo Park, California
Age range: 18 Years
🧪 Interventions in This Study
- Sano Genetics Testing Kit (GENETIC)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- ReCode Therapeutics, Inc. — Menlo Park, California
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Primary Ciliary Dyskinesia
- Clearance in Primary Ciliary Dyskinesia — Chapel Hill, North Carolina
- Use of Nasal Nitric Oxide Testing in Improving Primary Ciliary Dyskinesia Clinical Care — Little Rock, Arkansas
- Glycine and Magnesium+Thiamine for the Treatment of Primary Ciliary Dyskinesia — Mexico City,
- Utility of PCD Diagnostics to Improve Clinical Care — Nashville, Tennessee
- Utility of PCD Diagnostics to Improve Clinical Care — Hartford, Connecticut
Explore by condition: All Primary Ciliary Dyskinesia clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Review the official NIH record below to find the coordinating site.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.