Foundation for Sarcoidosis Research Advanced Cures Registry (FSR-SARC Registry) (NCT06234384)
🩺 Plain-English Summary (8th-Grade Level)
The goal of the study is to create a longitudinal record of patient reported outcomes for people living with sarcoidosis that maintains privacy. Patients report on the following: demographics, disease symptoms, diagnostic journey, provider experience, disease treatment, and burden of disease. Patients can also link their Electronic Health Records (EHR). The goal is to create a natural history of sarcoidosis, support research, and better understand the needs of the sarcoidosis community.
Who can join: Review the eligibility criteria below.
Location: Foundation For Sarcoidosis Research — Chicago, Illinois
Age range: 7 Years
🧪 Interventions in This Study
- Sarcoidosis diagnosis (OTHER)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Foundation For Sarcoidosis Research — Chicago, Illinois
📞 Contact the Study Coordinator
Phone: (312) 341-0500
Email: info@stopsarcoidosis.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Sarcoidosis
- Delayed-Enhancement Cardiovascular Magnetic Resonance in Patients With Sarcoidosis — Durham, North Carolina
- Vitamin D Homeostasis in Sarcoidosis — Dallas, Texas
- Virtual Patient Groups for Sarcoidosis Associated Fatigue — Cleveland, Ohio
Explore by condition: All Sarcoidosis clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.