🏛️ Verified NIH Record • Updated 2026-06-24
Global Prospective, Observational Cohort of Adult Patients With Primary Sclerosing Cholangitis (WIND-PSC Study) (NCT06297993)
A Global Multi-Center Prospective Observational Cohort to Support Drug Development in Adult Patients With Primary Sclerosing Cholangitis (WIND-PSC)
🟢 Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: PSC Partners Seeking a Cure
🩺 Plain-English Summary (8th-Grade Level)
Develop an appropriate real-world data comparator cohort to support the design, execution, and serve as an external control for interventional clinical trials in PSC.
Who can join: Review the eligibility criteria below.
Location: UC Davis — Sacramento, California
Age range: 18 Years to 75 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (18 Sites)
- UC Davis — Sacramento, California
- California Pacific Medical Center — San Francisco, California
- University of California, San Francisco — San Francisco, California
- Yale University — New Haven, Connecticut
- Schiff Center for Liver Diseases / University of Miami — Miami, Florida
- Indiana University — Indianapolis, Indiana
- Massachusetts General Hospital — Boston, Massachusetts
- Beth Israel Deaconess Medical Center — Boston, Massachusetts
- Mayo Clinic — Rochester, Minnesota
- UT Southwestern Medical Center — Dallas, Texas
- Virginia Commonwealth University — Richmond, Virginia
- University of Alberta — Edmonton, Alberta
- University Health Network — Toronto, Ontario
- Centre de recherche du centre hospitalier de l'Université de Montréal (CRCHUM) — Montreal, Quebec
- University Medical Center Hamburg-Eppendorf — Hamburg, Free and Hanseatic City of Hamburg
- University of Milano Bicocca — Milan, Monza (MB)
- Auckland University — Auckland,
- Oxford University Hospitals — Oxford,
📞 Contact the Study Coordinator
Phone: (303) 771-5227
Email: stephen@pscpartners.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in PSC
- PET/MRI of Primary Sclerosing Cholangitis — Charlestown, Massachusetts
Explore by condition: All PSC clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.