🏛️ Verified NIH Record • Updated 2025-07-01
A Natural History Study of Corneal Abrasions in Patients With Dystrophic Epidermolysis Bullosa (DEB) (NCT06563414)
🟢 Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: Krystal Biotech, Inc.
🩺 Plain-English Summary (8th-Grade Level)
This study is a non-interventional, observational study that will evaluate the natural history of corneal abrasions in patients with Dystrophic Epidermolysis Bullosa (DEB).
Who can join: Review the eligibility criteria below.
Location: Krystal Biotech — Pittsburgh, Pennsylvania
Age range: 6 Months
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Krystal Biotech — Pittsburgh, Pennsylvania
📞 Contact the Study Coordinator
Phone: (412) 586-5830
Email: dchien@krystalbio.com
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Epidermolysis Bullosa Dystrophica
- Artificial Intelligence Patient App for RDEB SCCs — Chicago, Illinois
- Self-Assembled Skin Substitute for the Treatment of Epidermolysis Bullosa — Toronto, Ontario
- Characteristics of Patients With Recessive Dystrophic Epidermolysis Bullosa — Stanford, California
Explore by condition: All Epidermolysis Bullosa Dystrophica clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.