🏛️ Verified NIH Record • Updated 2026-02-24
Motor Outcomes to Validate Evaluations in Pediatric FSHD (MOVE Peds) (NCT06847282)
🟢 Recruiting Interventional Protocol 📊 Observational Clinical Research Sponsor: University of Kansas Medical Center
🩺 Plain-English Summary (8th-Grade Level)
The primary goal of this study is to validate motor and functional outcomes and refine clinical trial strategies for pediatric-onset FSHD
Who can join: Review the eligibility criteria below.
Location: Stanford University — Palo Alto, California
Age range: 5 Years to 17 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (7 Sites)
- Stanford University — Palo Alto, California
- University of Iowa — Iowa City, Iowa
- University of Kansas Medical Center — Kansas City, Kansas
- University of Rochester — Rochester, New York
- Duke University — Durham, North Carolina
- University of Utah — Salt Lake City, Utah
- Murdoch Children's Research Institute — Melbourne,
📞 Contact the Study Coordinator
Phone: (913) 945-9920
Email: mwalker20@kumc.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
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💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.