An Observational Study of Participants With Type 3 Von Willebrand Disease on Prophylactic Standard-of-Care Treatment (NCT06883240)
A Multicenter Non-Interventional Study Evaluating Bleeds and Health-Related Quality Of Life in Patients With Type 3 Von Willebrand Disease on Prophylactic Standard-of-Care Treatment
🩺 Plain-English Summary (8th-Grade Level)
This non-interventional study (NIS) is designed to collect information on the effectiveness and safety of treatment received in routine clinical care, as well as measure the health-related quality of life (HRQoL) of participants with Type 3 von Willebrand disease (VWD) receiving prophylactic therapy per local standard of care (SOC) over an observation period of at least 24 weeks.
Who can join: Review the eligibility criteria below.
Location: UC Davis — Sacramento, California
Age range: 2 Years
🧪 Interventions in This Study
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (26 Sites)
Showing the first 25 of 26 sites.
- UC Davis — Sacramento, California
- University of Minnesota Medical Center — Minneapolis, Minnesota
- Washington University School of Medicine — St Louis, Missouri
- UZ Leuven Gasthuisberg — Leuven,
- The Hospital for Sick Children — Toronto, Ontario
- McGill University Health Center — Montreal, Quebec
- IPS SURA Industriales Medellín — Medellín,
- Hopital Claude Huriez - CHU Lille — Lille,
- Groupe Hospitalier Necker Enfants Malades — Paris,
- Universitätsklinikum Bonn — Bonn,
- Gerinnungszentrum Rhein-Ruhr;Gerinnungsambulanz — Duisburg,
- Hämophiliezentrum Med. Klinik III/Institut für Transfusionsmedizin — Frankfurt/M.,
- Universita' Degli Studi La Sapienza-Ist.Di Ematologia — Rome, Lazio
- IRCCS Ca' Granda Ospedale Maggiore Policlinico — Milan, Lombardy
- AOU Careggi — Florence, Tuscany
- Kurume University Hospital — Fukuoka,
- Tokyo Medical University Hospital — Tokyo,
- Erasmus MC — Rotterdam,
- Instytut Hematologii i Transfuzjologii — Warsaw,
- Charlotte Maxeke Johannesburg Academic Hospital — Johannesburg,
- Hospital Universitario la Paz — Madrid,
- Hospital Universtiario Virgen del Rocio — Seville,
- Sahlgrenska Universitetssjukhuset — Gothenburg,
- St Thomas' Hospital — London,
- Great Ormond Street Hospital — London,
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Von Willebrand Disease, Type 3
- Emicizumab for Severe Von Willebrand Disease (VWD) and VWD/Hemophilia A — Orange, California
- A Study to Assess the Efficacy and Safety of Emicizumab in Participants With Type 3 Von Willebrand Disease — Sacramento, California
Explore by condition: All Von Willebrand Disease, Type 3 clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Review the official NIH record below to find the coordinating site.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.