A Study to Assess Real-world Patient Characteristics and Clinical Course for Symptomatic Patients With PKP2-ACM (NCT06976606)
An Observational Study to Assess Real-world Patient Characteristics, Clinical Course, and Treatment Patterns for Symptomatic Patients With Arrhythmogenic Cardiomyopathy (ACM) Due To a PlaKoPhilin-2 Pathogenic Variant (PKP2)
🩺 Plain-English Summary (8th-Grade Level)
An observational study to assess real-world patient characteristics and clinical course of disease in participants with PKP2-ACM.
Who can join: Review the eligibility criteria below.
Location: Leland Stanford Junior University — Redwood City, California
Age range: 18 Years to 65 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (6 Sites)
- Leland Stanford Junior University — Redwood City, California
- Johns Hopkins University — Baltimore, Maryland
- Northshore University Healthsystem Research Institute — Columbia, Maryland
- University of Michigan — Ann Arbor, Michigan
- Henry Ford Hospital — Detroit, Michigan
- University of Rochester — Rochester, New York
📞 Contact the Study Coordinator
Phone: (212) 547-9879
Email: clinicaltrials@lexeotx.com
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Arrhythmogenic Cardiomyopathy
- Gene Therapy for ACM Due to a PKP2 Pathogenic Variant — Stanford, California
- Targeted Therapy With Glycogen Synthase Kinase-3 Inhibition for Arrhythmogenic Cardiomyopathy — Calgary, Alberta
Explore by condition: All Arrhythmogenic Cardiomyopathy clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.