๐๏ธ Verified NIH Record โข Updated 2025-08-18
CDH1-associated Blepharocheilodontic Syndrome Registry (NCT07133464)
๐ข Recruiting Interventional Protocol ๐ Observational Clinical Research Sponsor: Ohio State University
๐ฉบ Plain-English Summary (8th-Grade Level)
The aim of the CDH1-associated Blepharocheilodontic Syndrome (BCDS) registry is to better characterize the clinical features of this condition and exploring whether CDH1 variants linked to BCDS may also increase cancer risk.
Who can join: Review the eligibility criteria below.
Location: The Ohio State University โ Columbus, Ohio
๐ "Do I Qualify?" โ 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria โ
๐ All Participating Trial Locations (1 Sites)
- The Ohio State University โ Columbus, Ohio
๐ Contact the Study Coordinator
Phone: (614) 814-1047
Email: maegan.roberts@osumc.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
๐ฐ Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA ยง 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
Explore by condition: All Blepharocheilodontic Syndrome clinical trials
๐ก How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.