Quality of End-of-Life Care for Children With Cancer (NCT07412002)
Quality of End-of-Life Care for Children With Cancer: A COG Groupwide Observational Study
🩺 Plain-English Summary (8th-Grade Level)
This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.
Who can join: Review the eligibility criteria below.
Location: Kaiser Permanente-Oakland — Oakland, California
Age range: 18 Years
🧪 Interventions in This Study
- Non-Interventional Study (OTHER)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (15 Sites)
- Kaiser Permanente-Oakland — Oakland, California
- Alfred I duPont Hospital for Children — Wilmington, Delaware
- Memorial Regional Hospital/Joe DiMaggio Children's Hospital — Hollywood, Florida
- Nemours Children's Clinic-Jacksonville — Jacksonville, Florida
- Nemours Children's Hospital — Orlando, Florida
- Nemours Children's Clinic - Pensacola — Pensacola, Florida
- Sinai Hospital of Baltimore — Baltimore, Maryland
- Corewell Health Grand Rapids Hospitals - Helen DeVos Children's Hospital — Grand Rapids, Michigan
- Bronson Methodist Hospital — Kalamazoo, Michigan
- Albany Medical Center — Albany, New York
- Montefiore Medical Center - Moses Campus — The Bronx, New York
- Children's Hospital of Pittsburgh of UPMC — Pittsburgh, Pennsylvania
- Rhode Island Hospital — Providence, Rhode Island
- UT Southwestern/Simmons Cancer Center-Dallas — Dallas, Texas
- University of Virginia Cancer Center — Charlottesville, Virginia
📞 Contact the Study Coordinator
Phone: (877) 642-4691
Email: Kpoct@kp.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
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💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.