Heart Institute Biobank & Registry for Adult Congenital Heart Disease and Related Disorders (NCT07477197)
🩺 Plain-English Summary (8th-Grade Level)
A repository of biospecimens and detailed phenotypic information collected longitudinally from adults with congenital heart disease and related conditions, with an aim to facilitate future research on biologic mechanisms of underlying disease, compensation and deterioration; biologic correlates of patient experience and functional status; associations between clinical characteristics and various biomarkers; and predictors of clinical outcomes.
Who can join: Review the eligibility criteria below.
Location: Children's Hospital Medical Center, Cincinnati — Cincinnati, Ohio
Age range: 16 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Children's Hospital Medical Center, Cincinnati — Cincinnati, Ohio
📞 Contact the Study Coordinator
Phone: (513) 803-2243
Email: sasha.opotowsky@cchmc.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Adult Congenital Heart Disease
- Adult Congenital Heart Disease International EValuation of the Effectiveness of SGLT2i Registry — Baltimore, Maryland
- Efficacy Of Sodium Glucose Transporter Inhibitor (SGLT2I) In Adult Patients With Congenital Heart Disease — Pittsburgh, Pennsylvania
- Psychological Trauma, Post-Traumatic Stress Disorder, and Resilience in Adults With Congenital Heart Disease — Washington D.C., District of Columbia
Explore by condition: All Adult Congenital Heart Disease clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.