Spinal Dural Arteriovenous Fistula International Data and Outcomes Registry (NCT07574645)
SPIDER - Spinal Dural Arteriovenous Fistula International Data and Outcomes Registry
๐ฉบ Plain-English Summary (8th-Grade Level)
Given the lack of large multicenter datasets in the context of Spinal arteriovenous fistula, the strength of the evidence surrounding this rare disease is limited. SPIDER hence aims to address that by compiling patient-level data from centers all around the world.
Who can join: Review the eligibility criteria below.
Location: Thomas Jefferson University Hospital โ Philadelphia, Pennsylvania
๐ "Do I Qualify?" โ 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria โ
๐ All Participating Trial Locations (1 Sites)
- Thomas Jefferson University Hospital โ Philadelphia, Pennsylvania
๐ Contact the Study Coordinator
Phone: (215) 955-7000
Email: pascal.jabbour@jefferson.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
๐ฐ Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA ยง 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
Explore by condition: All Spinal Dural Arteriovenous Fistula clinical trials
๐ก How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.