Collaboration for Down Syndrome Progress (CDP) (NCT07625579)
The INCLUDE (INvestigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome) Project's Collaboration for Down Syndrome Progress (CDP) Program
🩺 Plain-English Summary (8th-Grade Level)
The Collaboration for Down Syndrome Progress (CDP) is a long-term study that follows people with Down syndrome of all ages. The goal is to better understand their health, development, and everyday experiences over time. Participants and their caregivers will answer questions, share medical information, and may give samples like blood or saliva. Some participants may also take part in optional activities such as sleep studies, movement tracking, or brain imaging. By collecting the same types of information at many sites, the CDP will help researchers learn why certain health conditions are more common in people with Down syndrome and how to improve care and quality of life.
Who can join: Review the eligibility criteria below.
Location: University of California Irvine — Orange, California
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (16 Sites)
- University of California Irvine — Orange, California
- University of Colorado Anschutz Medical Campus — Aurora, Colorado
- University of Miami — Miami, Florida
- Kansas University Medical Center — Kansas City, Kansas
- John Hopkins University — Baltimore, Maryland
- University of Minnesota — Minneapolis, Minnesota
- Washington University in St. Louis — St Louis, Missouri
- University of North Carolina at Chapel Hill — Chapel Hill, North Carolina
- The Children's Hospital of Philadelphia — Philadelphia, Pennsylvania
- The Children's Hospital of Philadelphia — Philadelphia, Pennsylvania
- University of Pittsburgh — Pittsburgh, Pennsylvania
- St. Jude Children's Research Hospital — Memphis, Tennessee
- Texas Children's Hosptial/Baylor College of Medicine — Houston, Texas
- University of Texas Health Science Center at San Antionio — San Antonio, Texas
- University of Washington — Seattle, Washington
- University of Wisconsin-Madison — Madison, Wisconsin
📞 Contact the Study Coordinator
Phone: (919) 541-6000
Email: jehunter@rti.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Down Syndrome
- Evaluating Treatment of ADHD in Children With Down Syndrome — Sacramento, California
- Effects of Hypoglossal Nerve Stimulation on Cognition and Language in Down Syndrome and Obstructive Sleep Apnea — Atlanta, Georgia
- Using Personal Mobile Technology to Identify Obstructive Sleep Apnea in Children With Down Syndrome (UPLOAD) — Ottawa, Ontario
- Executive Function Play Opportunities for Children With Down Syndrome — Fort Collins, Colorado
- Escalating Doses of Memantine in Down Syndrome (MEDS-123) — Cleveland, Ohio
- Natural History of Dysregulation and Aging of the Immune System in People With Trisomy 21 With and Without Thymectomy — Bethesda, Maryland
Explore by condition: All Down Syndrome clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.