UTHealth Turner Syndrome Research Registry (NCT03185702)
🩺 Plain-English Summary (8th-Grade Level)
The investigators will conduct genetic comparisons between Turner Syndrome (TS) patients with and without Bicuspid Aortic Valve (BAV) to identify causative agents of BAV in people with TS. The investigators will correlate the patterns and prevalence of structural heart defects in TS women with emerging molecular data to identify patients who are at high risk for cardiovascular complications
Who can join: Review the eligibility criteria below.
Location: University of Texas Health Science Center Houston — Houston, Texas
🧪 Interventions in This Study
- Research genetic tests (GENETIC)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- University of Texas Health Science Center Houston — Houston, Texas
📞 Contact the Study Coordinator
Phone: (713) 500-7003
Email: Siddharth.K.Prakash@uth.tmc.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Turner Syndrome
- A Trial to Investigate Different Doses of Lonapegsomatropin Compared to Somatropin in Individuals With Turner Syndrome — Palo Alto, California
- Pre-pubertal Low Dose Transdermal Estradiol in Turner Syndrome — Washington D.C., District of Columbia
- Vosoritide for Short Stature in Turner Syndrome — Washington D.C., District of Columbia
- Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry — Aurora, Colorado
- Trial Investigating the Efficacy and Safety of Weekly Lonapegsomatropin Compared to Daily Somatropin in Children and Adolescents With Short Stature or Growth Failure Due to Growth Hormone Sufficient Disorders — Palo Alto, California
Explore by condition: All Turner Syndrome clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.