Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry (NCT05052606)
INSIGHTS Registry - Inspiring New Science In Guiding Healthcare in Turner Syndrome
🩺 Plain-English Summary (8th-Grade Level)
INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.
Who can join: Review the eligibility criteria below.
Location: Children's Hospital Colorado — Aurora, Colorado
🧪 Interventions in This Study
- No intervention (OTHER)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (10 Sites)
- Children's Hospital Colorado — Aurora, Colorado
- Children's National — Washington D.C., District of Columbia
- Lurie Children's — Glenview, Illinois
- University of Kansas — Lawrence, Kansas
- UNC Hospitals Children's Specialty Clinic — Chapel Hill, North Carolina
- Cincinnati Children's Hospital Medical Center — Cincinnati, Ohio
- Nationwide Childern's Hospital — Columbus, Ohio
- Children's Hospital of Philadelphia — Philadelphia, Pennsylvania
- The University of Texas Health Science Center at Houston — Houston, Texas
- Seattle Children's — Seattle, Washington
📞 Contact the Study Coordinator
Phone: (720) 777-6073
Email: shanlee.davis@childrenscolorado.org
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Turner Syndrome
- A Trial to Investigate Different Doses of Lonapegsomatropin Compared to Somatropin in Individuals With Turner Syndrome — Palo Alto, California
- Pre-pubertal Low Dose Transdermal Estradiol in Turner Syndrome — Washington D.C., District of Columbia
- UTHealth Turner Syndrome Research Registry — Houston, Texas
- Vosoritide for Short Stature in Turner Syndrome — Washington D.C., District of Columbia
- Trial Investigating the Efficacy and Safety of Weekly Lonapegsomatropin Compared to Daily Somatropin in Children and Adolescents With Short Stature or Growth Failure Due to Growth Hormone Sufficient Disorders — Palo Alto, California
Explore by condition: All Turner Syndrome clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.