Amyotrophic Lateral Sclerosis (ALS) Families Project (NCT03865420)
🩺 Plain-English Summary (8th-Grade Level)
This program provides family members of individuals with familial ALS the opportunity to contribute to research focused on learning more about why motor neuron degeneration begins and how or why it progresses. This study provides genetic counseling and testing to help participants understand and manage their risk and determine if they want to learn their genetic status. This study will follow unaffected ALS gene mutation carriers on an annual basis to gather essential information that will ultimately help researchers develop novel therapies for the prevention and treatment of ALS.
Who can join: Review the eligibility criteria below.
Location: Columbia University — New York, New York
Age range: 18 Years to 105 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Columbia University — New York, New York
📞 Contact the Study Coordinator
Phone: (347) 852-5315
Email: ALSFamiliesProject@cumc.columbia.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in ALS
- Intrathecal Autologous Adipose-derived Mesenchymal Stromal Cells for Amyotrophic Lateral Sclerosis (ALS) — Scottsdale, Arizona
- Adenosine 2A Receptor Antagonism and AIH in ALS — Gainesville, Florida
- ALS/MND Natural History Study Data Repository — Loma Linda, California
- NYSCF Scientific Discovery Biobank — New York, New York
- Combined Respiratory Training in Persons With ALS — Fort Lauderdale, Florida
- ECoG BMI for Motor and Speech Control — San Francisco, California
Explore by condition: All ALS clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.