Video Inspired Discussions About Ethical Outcomes in Pediatrics (NCT06786104)
A Multisite RWCT Comparing the Effectiveness of a Goals of Care Video and Navigator Intervention, the VIDEO-PEDS Experience, Versus Usual Care in Pediatric Cancer
🩺 Plain-English Summary (8th-Grade Level)
The goal of this clinical trial is to learn if the VIDEO-PEDS intervention works to improve Goals of Care communication between clinicians and parents of children with cancer. The main questions it aims to answer are: Does the intervention improve Goals of Care documentation? Does it improve patient outcomes (including less invasive preferences for resuscitation and interventions, less hospital utilization, and more palliative care and hospice use)? Does it improve parent outcomes (including health satisfaction and feeling heard and understood per survey scores)?
Who can join: Review the eligibility criteria below.
Location: Children's of Alabama at Birmingham — Birmingham, Alabama
🧪 Interventions in This Study
- VIDEO-PEDS (OTHER)
- VIDEO-PEDS pilot (OTHER)
- Focus Group (OTHER)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (4 Sites)
- Children's of Alabama at Birmingham — Birmingham, Alabama
- Children's Hospital of Atlanta — Atlanta, Georgia
- Dana Farber Cancer Institute — Boston, Massachusetts
- Dartmouth Hitchcock Medical Center — Lebanon, New Hampshire
📞 Contact the Study Coordinator
Phone: (617) 724-2911
Email: jwolfe@mgh.harvard.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
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💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.