Emphysema Research Registry and Biosample Repository (NCT00307281)
Emphysema Research Registry; Screening Study and Genetic Testing
🩺 Plain-English Summary (8th-Grade Level)
The Comprehensive Lung Center (CLC) at the University of Pittsburgh Medical Center (UPMC Health System) provides patients with any type of breathing or lung disorder a full range of diagnostic and therapeutic services. The Emphysema/COPD Research Center (ECRC) is a specialty clinic, within this center, that attempts to advance the understanding of emphysema and to evaluate new therapies for patients with emphysema. The Emphysema Research Registry will enable pulmonary research physicians to: 1) gather information and create a research registry of people who have been diagnosed with emphysema; 2) utilize this research registry with the purpose of conducting research that attempts to advance the understanding of emphysema and to evaluate new therapies; and, 3) use the research registry to identify potential candidates for future research programs. These aims will be achieved by the collection of DNA (genetic material)for analysis and storage in addition to pulmonary function tests and other medical information.
Who can join: Review the eligibility criteria below.
Location: University of Pittsburgh Emphysema/COPD Research Center — Pittsburgh, Pennsylvania
Age range: 21 Years
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- University of Pittsburgh Emphysema/COPD Research Center — Pittsburgh, Pennsylvania
📞 Contact the Study Coordinator
Phone: (412) 692-4800
Email: consolaropj@upmc.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Emphysema
- Doxycycline for Emphysema in People Living With HIV (The DEPTH Trial) — Birmingham, Alabama
- Functional CT Assessment of Pulmonary Arterial Dysfunction in Smoking Associated Emphysema — Iowa City, Iowa
- Zephyr Valve Registry (ZEVR) — Birmingham, Alabama
- Characterizing Matrix Metalloproteinase-12 (MMP12) in Sputum — Hamilton, Ontario
- STRIVE Post-Market Registry Study — Phoenix, Arizona
Explore by condition: All Emphysema clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.