πŸ›οΈ Verified NIH Record β€’ Updated 2026-04-28

Hidradenitis Suppurativa Prospective Observational Registry and Biospecimen Repository (NCT04115566)

🟒 Recruiting Interventional Protocol πŸ“Š Observational Clinical Research Sponsor: University of California, San Francisco

🩺 Plain-English Summary (8th-Grade Level)

Hidradenitis suppurativa (HS) is a common and debilitating skin disease that is poorly understood and understudied. As a result, little is known about disease prognosis and few effective treatments exist for this condition. This prospective observational cohort study aims to comprehensively characterize the clinical and biological features of HS. The results of this research will provide a basis for the development of an HS clinical classification system and identification of potential treatments for HS.

Who can join: Review the eligibility criteria below.

Location: University of California San Francisco β€” San Francisco, California

Age range: 10 Years

πŸ“‹ "Do I Qualify?" β€” 1-Minute Self Screener

Instant Checklist

Full eligibility criteria are available on the official NIH protocol. View the criteria β†—

πŸ“ All Participating Trial Locations (1 Sites)

  • University of California San Francisco β€” San Francisco, California

πŸ“ž Contact the Study Coordinator

Phone: (415) 961-3786

Email: hsprogress@ucsf.edu

Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.

πŸ’° Cost, Insurance & Patient Rights

  • 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
  • Routine Patient Care: Under federal law (ACA Β§ 2709) and many state statutes, routine care costs are covered during participation.
  • Voluntary Participation: You may withdraw at any time without affecting your standard medical care.

πŸ’‘ How to Participate

  1. Check the checklist above to see if you may qualify.
  2. Contact the study coordinator using the phone/email above.
  3. Ask about the visit schedule, what is covered at no cost, and any travel support.
  4. Confirm with your own doctor before making a decision.
πŸ›οΈ View Official NIH Record β†—