Mental Health Crises in Youth With IDDs (NCT05471232)
Understanding Mental Health Crises in Youth With Intellectual and Developmental Disabilities
🩺 Plain-English Summary (8th-Grade Level)
This study is an unmatched, case-control study of 150 youth (Ages 7-17) with a parent reported Intellectual Developmental Disability (IDD) who present to Rady Children's Hospital Emergency Department with a Mental Health Crisis (MHC). Rady Children's Institute for Genomic Medicine (RCIGM) will collect biological samples (such as blood) of these participants to study their genomes, medical and psychiatric profiles to better understand specific characteristics that may predispose them to MHC's. The 150 youth will be compared to historical, publicly available cohorts of youth with IDD's
Who can join: Review the eligibility criteria below.
Location: Rady Children's Hospital San Diego — San Diego, California
Age range: 7 Years to 17 Years
🧪 Interventions in This Study
- Genomic sequencing and molecular diagnostic results, if any. (GENETIC)
- EHR-Based Network Model (OTHER)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Rady Children's Hospital San Diego — San Diego, California
📞 Contact the Study Coordinator
Phone: (858) 576-1700
Email: abesterman@health.ucsd.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Intellectual Disability
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- Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers — New Hyde Park, New York
- Characterization of Nociception Phenotype in Individuals With Intellectual Disability — Bethesda, Maryland
- Cooking Skills to Improve Long-Term Weight Loss in Young Adults With Intellectual Disabilities — Kansas City, Kansas
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Explore by condition: All Intellectual Disability clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.