Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers (NCT06065527)
🩺 Plain-English Summary (8th-Grade Level)
This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partnered with an attention-control Centers for Disease Control and Prevention (CDC) sponsored website on health promotion for people with disabilities. The goal of this clinical trial is to promote long-term care (LTC) knowledge and planning among individuals with intellectual/developmental disabilities (IDD) and their family caregivers to improve social supports, health, and quality of life outcomes.
Who can join: Review the eligibility criteria below.
Location: Cohen Children's Medical Center — New Hyde Park, New York
Age range: 18 Years
🧪 Interventions in This Study
- Map Our Life (BEHAVIORAL)
- Attention Control (BEHAVIORAL)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- Cohen Children's Medical Center — New Hyde Park, New York
📞 Contact the Study Coordinator
Phone: (516) 465-4377
Email: sjan1@northwell.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Intellectual Disability
- Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities — Carrboro, North Carolina
- Characterization of Nociception Phenotype in Individuals With Intellectual Disability — Bethesda, Maryland
- Mental Health Crises in Youth With IDDs — San Diego, California
- Cooking Skills to Improve Long-Term Weight Loss in Young Adults With Intellectual Disabilities — Kansas City, Kansas
- Metformin for Antipsychotic-induced Weight Gain in Adults With Intellectual Disability — Toronto, Ontario
Explore by condition: All Intellectual Disability clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.