Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities (NCT05986305)
🩺 Plain-English Summary (8th-Grade Level)
This study will determine the comparative effectiveness of Go Act, a tailored advocacy curriculum versus Peer parent-directed peer learning for increasing parent activation for parents of youth with intellectual and developmental disabilities. Second, it will determine the comparative effectiveness of the two study arms for improving parent and youth health outcomes while assessing whether parent activation serves as a mechanism that mediates their effects on health outcomes.
Who can join: Review the eligibility criteria below.
Location: The Carolina Institute for Developmental Disabilities — Carrboro, North Carolina
Age range: 11 Years to 27 Years
🧪 Interventions in This Study
- Go Act (BEHAVIORAL)
- Peer (BEHAVIORAL)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (2 Sites)
- The Carolina Institute for Developmental Disabilities — Carrboro, North Carolina
- UNC Adult Psychiatry Clinic — Chapel Hill, North Carolina
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
More studies in Intellectual Disability
- Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers — New Hyde Park, New York
- Characterization of Nociception Phenotype in Individuals With Intellectual Disability — Bethesda, Maryland
- Mental Health Crises in Youth With IDDs — San Diego, California
- Cooking Skills to Improve Long-Term Weight Loss in Young Adults With Intellectual Disabilities — Kansas City, Kansas
- Metformin for Antipsychotic-induced Weight Gain in Adults With Intellectual Disability — Toronto, Ontario
Explore by condition: All Intellectual Disability clinical trials
💡 How to Participate
- Check the checklist above to see if you may qualify.
- Review the official NIH record below to find the coordinating site.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.