Improving PCP Advance Care Planning for People With ADRD (NCT06565169)
Improving Primary Care Clinician's Advance Care Planning Alzheimer's Disease and Related Dementias
🩺 Plain-English Summary (8th-Grade Level)
This study will test the Dementia Advance Care Planning (AD ACP) Toolkit intervention to usual care in facilitating goals of care (GOC) discussions between People Living with Dementia (PLwD) and primary care team members over an 18-month period. The primary outcome is to assess the frequency and quality of GOC discussions with PLwD. Secondary outcomes include the identification of preferred surrogates, assessment of decisional capacity, and the completion of portable ACP orders. This randomized clinical trial aims to determine if the AD ACP Toolkit can enhance ACP practices and improve care planning outcomes for PLwD compared to the standard care approach.
Who can join: Review the eligibility criteria below.
Location: University of North Carolina, Chapel Hill — Chapel Hill, North Carolina
Age range: 18 Years to 99 Years
🧪 Interventions in This Study
- Primary Care Team Advance Care Planning With People with Alzheimer's Disease or a Related Dementia Training (BEHAVIORAL)
- Care as Usual (BEHAVIORAL)
📋 "Do I Qualify?" — 1-Minute Self Screener
Instant ChecklistFull eligibility criteria are available on the official NIH protocol. View the criteria ↗
📍 All Participating Trial Locations (1 Sites)
- University of North Carolina, Chapel Hill — Chapel Hill, North Carolina
📞 Contact the Study Coordinator
Phone: (412) 286-2507
Email: KISTLERC@pitt.edu
Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.
💰 Cost, Insurance & Patient Rights
- 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
- Routine Patient Care: Under federal law (ACA § 2709) and many state statutes, routine care costs are covered during participation.
- Voluntary Participation: You may withdraw at any time without affecting your standard medical care.
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💡 How to Participate
- Check the checklist above to see if you may qualify.
- Contact the study coordinator using the phone/email above.
- Ask about the visit schedule, what is covered at no cost, and any travel support.
- Confirm with your own doctor before making a decision.