๐Ÿ›๏ธ Verified NIH Record โ€ข Updated 2026-02-20

A Personalized Surveillance and Intervention Protocol for Patients With Familial Adenomatous Polyposis That Have Undergone (Procto)Colectomy (NCT04678011)

๐ŸŸข Recruiting Interventional Protocol ๐Ÿ“Š Observational Clinical Research Sponsor: Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA)

๐Ÿฉบ Plain-English Summary (8th-Grade Level)

The purpose of this study is to determine the efficacy and safety of a personalised surveillance and intervention protocol for patients with familial adenomatous polyposis (FAP) that have undergone (procto)colectomy.

Who can join: Review the eligibility criteria below.

Location: MD Anderson โ€” Houston, Texas

Age range: 18 Years

๐Ÿงช Interventions in This Study

  • Personalized surveillance and intervention protocol (PROCEDURE)

๐Ÿ“‹ "Do I Qualify?" โ€” 1-Minute Self Screener

Instant Checklist

Full eligibility criteria are available on the official NIH protocol. View the criteria โ†—

๐Ÿ“ All Participating Trial Locations (2 Sites)

  • MD Anderson โ€” Houston, Texas
  • Academic Medical Centre โ€” Amsterdam, North Holland

๐Ÿ“ž Contact the Study Coordinator

Phone: (919) 923-4430

Email: aglincoln@mdanderson.org

Coordinator details come directly from the registered NIH protocol. Confirm the study is still recruiting before traveling.

๐Ÿ’ฐ Cost, Insurance & Patient Rights

  • 100% Free Items: The investigational treatment and protocol-required procedures are supplied at zero cost by the sponsor.
  • Routine Patient Care: Under federal law (ACA ยง 2709) and many state statutes, routine care costs are covered during participation.
  • Voluntary Participation: You may withdraw at any time without affecting your standard medical care.

๐Ÿ’ก How to Participate

  1. Check the checklist above to see if you may qualify.
  2. Contact the study coordinator using the phone/email above.
  3. Ask about the visit schedule, what is covered at no cost, and any travel support.
  4. Confirm with your own doctor before making a decision.
๐Ÿ›๏ธ View Official NIH Record โ†—